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Why isnt there a cure for MDED

Viewing 6 posts - 1 through 6 (of 6 total)
  • September 19, 2014 at 5:01 pm #75377
    Why isnt there a cure for MDED

    simple but complicated question.

    Mded89
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    September 21, 2014 at 11:56 am #94778
    Re: Why isnt there a cure for MDED

    As far as I’m aware, there are no cures for any type of muscular dystrophy, unfortunately. Researchers are doing their best and progress has been made but we can only hope that in time there WILL be a cure, if not necessarily for us but for other, younger people with MD.

    Sybylla

    sybyllascarlett
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    September 21, 2014 at 7:30 pm #94779
    Re: Why isnt there a cure for MDED

    Simple but difficult.

    Sybella puts it exactly right.

    There is however much more understanding and back up for sufferers and
    help with a whole range of coping strategies.

    Keep asking questions.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
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    October 2, 2014 at 1:46 pm #94780
    Re: Why isnt there a cure for MDED

    In over the 25 years of me having MD, i haven’t seen any real change in what the doctors do. I believe the people who have MD should be told about the steps forward that take place, because i dont know of any.

    Mded89
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    October 3, 2014 at 9:04 am #94781
    Re: Why isnt there a cure for MDED

    @mded89 wrote:

    In over the 25 years of me having MD, i haven’t seen any real change in what the doctors do. I believe the people who have MD should be told about the steps forward that take place, because i dont know of any.

    It can get a bit technical but on the main site there is a section on Research News ….. LINKED HERE

    I imagine one of the issues with research into treatment is how to get that treatment into the body, I do not see it being an injection/pill method but possibly something far more complicated …. so in some ways they are researching the how to administer as much as how to treat/cure/prevent.

    Also available online are the charity’s two magazines TargetMD and Target Research LINKED HERE

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
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    October 6, 2014 at 9:01 pm #94782
    Re: Why isnt there a cure for MDED

    Oh thanks this was the type of info I was after :)

    Mded89
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