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We are strong together
I and my two brothers have limb girdle type of muscular dystrophy,Yes Sam you rightly say we are strong together if we all having muscular dystrophy will share our problems with each other and will request our researchers to make it possible soon to have a treatment then we are really very much strong we have many people with us.
I am a house wife have a daughter of 7 years I have to take care of her and his father my husband who is a very nice man I cook food for them and also have to do all the house hold works like dish washing, cooking etc I have a maid for washing clothes and cleaning house beside this I have to do all of my works I manages them not very easy but can do them but when got pain in knees then with very much difficulty.
Most important thing in my life is the stucdy of my daughter she is in class two,she is studing in a Catholic school Sacred heart Cathedral I am very mush satisfied with her study.Here her writing and English is preparing very good,I finish all my works before evening in day time then every evening spend in her study which give me very much satisfaction.I mostly live in home not go out side which is very difficult for me because my husband do not like to use wheel chair and I have to walk to go out side which is very difficult for me I can walk but with support and very slowly this is my story and I would like any one to talk and share who have also same difficulties.Re: We are strong togetherHello Fizamama, thanks for posting.
I am sorry that your husband does not like to use the wheelchair but it is for your benefit, not his. I am recovering from foot and leg surgery and have had to use a wheelchair for 5 months now, both my wife and son have pushed me in it, none of us like it but it makes going out possible and stops me from being in pain or having accidents.
I help my wife around the house while I am off work, I cook and wash dishes, and I help her with her studies as she is a student nurse who will qualify in January and, hopefully, find a job.
Is English your first language?
Hope to read some more of your posts.
Re: We are strong togetherHello Fizamama,
You sound like you have a very strong family bond, like you say, you are strong together. I imagine the medical systems and social help is very different in Pakistan. It is a shame your husband does not like taking you out in the wheelchair, it does make getting out so much more easier. I was reluctant to rely on my chair but now it is second nature and there are so many things I would ever have done had I not used the chair.
Congratulations to your daughter, you must all be very proud of her.
I'm always the animal, my body's the cage
I blog about nothingness www.amgroves.com
Re: We are strong togetherits hard for everyone at first when a wheelchair joins the family.
have you considered using power chairs and scooters that are avalable in some UK supermarkets and shopping malls. They usually require a little yearly member fee that varies from place to place. You will be less tired and will be able to get about on your own. And your Husband may come to terms with the change if he seen how much more mobile you could be using a loaned powerchair when shopping. I started using shop mobility when on holiday a few years ago and it was a great way to work my self into accepting the help of a chair. I personally dont like being pushed about in a manual chair as I feel people dont talk directly to me. I feel much more indipendant in power chairs and and eventually was able to buy a power Scooter.
On another thought is your husbands problem not with you being in the chair but the difficulty actually pushing the chair, my mum always has problems pushing a manual chair anytime we need to use one(she has issues stearing in a straigt line). if so, some manual wheelchairs come with a speacial battery that takes the effort out of the pushing the chair. Or is your husband a tall man, its may be that he is uncomfortable with the angle he has to take to push the chair.
You mention your little girl is 7. Before I had my power scooter I was unable to look after my sisters children (6 &9) outside of the house on my own. but now it is safe for me to collect them from school take them to the park and short bike rides. When the youngest is tired I can simply lift him on my knee and carry him..
Hope you find a solution
take care
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