Vent

@mistynow wrote:

Need to vent tonight

In the words of Frasier Crane – I’m listening

@mistynow wrote:

‘So are you going to be one of the ones going back to work soon’ ?

Oh extra insensitivity points there! Nurse must have been on one of those ‘relate to your patient’ courses.

@mistynow wrote:

Kept my dignity

Wow – I doubt I would have

@mistynow wrote:

Lets say by the time I left she was fully aware of a few basic facts of life regarding how these disorders can affect us.

You go girlfriend!

@mistynow wrote:

In fact I must have been moderately successful as I got an apology from her and a chat on a friendly level as to how the D.L.A. changes could affect us including how I would have needed hospital transport booked for my follow up appointments I left feeling that even some N.H.S staff have no concept of how disability can impact on daily life.

::applaud:: ::applaud::

Hi! All,
well nothing surprises me anymore! Why don’t they just pay for us all to go to dignitas and be done with it! Nobody even a PM with a severly disabled son who sadly passed away, understands or cares!
I have had NHS staff talk about me in front of me whislt completely paralysed on a stretcher! Saying I need a psychiatrist! So to all NHS staff “GET A BRAIN CELL!” :evil:
I recently , last week, visited the National Hospital for Neurology in Queen Square London, had to wait months for an appointment then when I got there hardly any patients!
But that wasn’t the reason for this rant! I was to have various tests incl an open muscle biopsy which I wasn’t given any info or advice about.they chopped & changed my tests around constantly arguing with other departments. As I have weaknes in legs arms, breathing difficulties, swallowing difficulties, go part and fully paralyses daily even when asleep! Etc
Now you would think that they would have more sense than to put me in a patient hotel with no phone in room! No Receptionist! A million stairs! A bathroom with no access for wheelchairs! My husband had to cancel all his work for the next few days and stay with me fearing for my safety! If they had of told me how disabling it would be, and that they are short of wheelchairs! I would’ve brought my own!
More sense not to do the muscle biopsy the first day rendering me totally immobile! I had to beg to borrow a wheelchair !
Which I got as a ‘special consession’ honestly you couldn’t make this stuff up!
Then they where um and arghing about how to do EMG with a recently opperated on leg!
I didn’t get any breakfast or hardly any food! Had to send hubby to try and grab something!
The final blow was when I arrived at my EMG, whilst in the loo my hubby waited outside with wheelchair and overheard the neurologist saying that he didn’t want to do all of my test as it was the most BORING test in the world! HOW DARE THEY!
Luckily my husband is a Barrister practising in clin Neg! So I got my tests! ALL of them!!!!
Don’t take anything for granted in the NHS or trust any of them!
Rant over! Boy that feels better!