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  • #74482
    Southampton Muscle Workshop-We want you!

    The Muscular Dystrophy Campaign would like to invite individuals with muscular dystrophy or a related condition living in or around Southampton to our next muscle group workshop. With education squarely back in the country’s periphery the charity has decided to focus on educational issues and inspiring individuals with neuromuscular conditions.

    The workshop will be an opportunity to talk about educational issues, growing up with muscular dystrophy or a related condition, options for the future and mentoring. Lilly Gyergyak, a Paediatric Neurology Nurse, will be speaking as well the inspirational John Hastie, the man behind the awarding winning film ‘A Life Worth Living’, which tells the story of one mans journey to meet remarkable Duchenners who are all living productive, creative and fulfilling lives.

    With the changing landscape of the education system, the workshop is aimed at supporting and advising families about their child’s education and how to manage their condition during this defining period in their lives.

    You will hear about the campaign work of the charity, fundraising opportunities in the area, and have the opportunity to share experiences with other individuals and parents live with a neuromuscular condition. We will also being hearing from Neil Bennett the Muscular Dystrophy Campaign’s new Research Communications Officer about his role and the latest research news.

    The details of the workshop are:

    Friday 31st August 2012: 1pm-3pm, Holiday Inn Express Southampton, Botley Road, West End, Southampton SO30 3XA

    The venue is wheelchair accessible and there is free parking.

    New members are encouraged to come along!

    If you are keen to attend please contact the Muscular Dystrophy Campaign:

    020 7803 4808
    d.moore-crouch@muscular-dystrophy.org

    AdvocacyDave
    Participant
    Posts: 32
    Joined: 09/01/2012
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