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  • #74386
    Pre-existing health insurance?? 13mo diagnosed

    Hi all,

    On Monday we found out that our gorgeous little boy is suffering either from Duchenne’s or Becker’s MD. He is 13 months old. We discovered by chance, as he’d been hospitalised with a stomach bug and a routine blood test showed his CPK to be off the scale. Samples were sent off for genetic testing and on Monday we sadly discovered he has MD, most likely to be Duchenne’s unless his guardian angels work overtime. He’s currently symptomless as he’s so young, and the two neurologists we met since Monday advise just to sit out the next few years as there really is nothing to be done for him when no symptoms are present.

    It’s been a hellish week, we are working hard to come to terms with this. My question is this: we live in Greece and now we can’t get him private health insurance as it’s a pre-existing condition. So far all the care we have received has been for free on the Greek NHS, and I can’t fault it at all. I just wanted to look into private insurance thinking about the future, as we’re willing to go wherever the latest research is or the best doctors are. I spoke to Bupa International this morning and they won’t cover us.

    Does anyone know of any providers who would cover us for a pre-existing condition such as this?

    Thanks in advance for your help and may we all find the strength to get through this trial.

    Anonymous
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    Joined: 01/01/1970
    #85427
    Re: Pre-existing health insurance?? 13mo diagnosed

    Oh my, I hope your little one has recovered from what initially sent him to hospital. Such a young age to be ill, must be distressing for you both as parents.

    I googled and found details of a “Muscular Dystrophy Association – Greece”

    Hellas ‘Mavromatteon 11 106 82 Athens GREECE

    Tel:+ 301 8256834 & + 301 8256835
    Fax:+ 301 8210098
    Email: mdahellas@otenet.gr
    MDA Hellas – Greece
    296, Kifissias Avenue and Navarinou Str, 15232 Halandri, Athens

    I also found their website MDA Hellas, I went through google to translate it, I am not sure if they have a message section, but it ay be worth an email to ask questions.

    Good luck.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #85429
    Re: Pre-existing health insurance?? 13mo diagnosed

    Thanks, he’s over what he was hospitalised with and no symptoms as he’s so young for DMD. I just wanted to find out if anyone would insure him now with this condition but so far seems no. I’ve already met MDA Ellas, and as you said, they’re great people :) their positive outlook really helped. x

    Anonymous
    Inactive
    Posts: 0
    Joined: 01/01/1970
    #85428
    Re: Pre-existing health insurance?? 13mo diagnosed

    Hello hsmum, i’m sorry to hear about your wee man’s diagnosis. I’m sure the last thing you need at the moment is to worry about insurance companies, they are the scum of the earth as far as i am concerned. (almost on a par with politicians)

    There must be cover available somewhere, but i bet they would charge you a King’s ransom. These crooks aren’t interested in paying out of course.

    All the very best
    Ranald

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
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