polymyositis+ me = ALONE

Hey everyone, ive been dignosied with ploymyosistis for almost 2years now. Ive been through the wars and back. Im having a flare up at the minute and ive never met or know anyone with the same disease as me. Ive met people with lupus which is smiliar but there conditons were very mild incamparision to mine.
Im hoping to meet someone with myositis and maybe they could give me tips and just talk about our condition.