Viewing 5 posts - 1 through 5 (of 5 total)
  • #74523
    Physiotherapy For Rigid Spine Syndrome

    Hi,

    I have a form of Rigid Spine Syndrome Muscular Dystrophy. I start physiotherapy this Wednesday. I am going for my first assessment, and I was wondering if there was anyone on here that could advise me on what to expect and what sort of physio I can expect to be given?

    Thank you,

    Lers :)

    Anonymous
    Inactive
    Posts: 0
    Joined: 01/01/1970
    #86376
    Re: Physiotherapy For Rigid Spine Syndrome

    Hi Lers,

    I have an undiagnosed form of MD & I’m told I have some spinal rigidity. I’m also about to start physio at my local hospital (next Saturday), and don’t to know what to expect either. Is it an md physio that you’re seeing?

    Sorry I can’t be more help, but please let us know how you get on.

    Hope it goes well for you

    redpanda
    Participant
    Posts: 45
    Joined: 26/09/2010
    #86377
    Re: Physiotherapy For Rigid Spine Syndrome

    I dont have rigid spine disease but an undiagnosed form of MD.

    From what my physio has told me it is person specific there is some things they will do with all types of MD but the actual programme will be concentrated on your specific problems. I know on my bad days when exercise is too much I get massage from physio as it helps my pain and loosens me up. I was surprised they knew some of my problems without me mentioning them – I had a sore bits from walking awkwardly.

    Good luck with your physio I hope it gives you some help.

    Best wishes
    Gill

    miracle77
    Participant
    Posts: 267
    Joined: 17/08/2011
    #86378
    Re: Physiotherapy For Rigid Spine Syndrome

    @redpanda wrote:

    Hi Lers,

    I have an undiagnosed form of MD & I’m told I have some spinal rigidity. I’m also about to start physio at my local hospital (next Saturday), and don’t to know what to expect either. Is it an md physio that you’re seeing?

    Sorry I can’t be more help, but please let us know how you get on.

    Hope it goes well for you

    Hi Redpanda,

    I’m initially seeing a specialist MD physiotherapist on Wednesday for my first assessment in a hospital in London. There, the MD physiotherapist will plan out a physiotherapy program with me, then I will be regurlarly followed up at my local hospital by a normal physiotherapist (as there is no specialist MD physiotherapist at my local hospital) too see how I am progressing with the program.

    The reason why it’s being done like this is, the closest specialist MD physiotherapy unit to me, is in London. My neuromuscular disease specialist, she feels by the time I have travelled to London (which is not an easy journey) for physiotherapy, I will be too tried to do any physio, so she feels this is the best way for the time being.

    I hope your first assessment goes well too on Saturday. I will let you know how I get on.

    Lers :)

    Anonymous
    Inactive
    Posts: 0
    Joined: 01/01/1970
    #86379
    Re: Physiotherapy For Rigid Spine Syndrome

    Lers,

    I maybe second guessing here. Also it has been a decade since I was physio assessed, so forgive the faults of my aged grey matter.

    I would imagine the MD Physio in London will spend time talking to you, getting to gauge what your strong areas are and the weaker ones that need help. While I imagine there will be some physiotherapy in action as you are not going to be regularly attending that clinic, it is likely to be more of a “show and tell”, sort of do this, like this, and I want you to do that x number of times.

    When I came back from my physio I made myself a detailed sheet of the exercises, it helped me to remember everything. I also printed off a copy and gave a copy to the physios to put in my file [you never see the same person twice], that way we were all singing from the same hymn sheet.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
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