Re: physio provision
I was in the same boat, local authority could not provide regular physiotherapy as I would not be seen as improving! I see a Neuromuscular Physio at my annual appointment and she liaises with the local physio that I pay privately. I found her by contacting a rehab centre in a nearby town who made some recommendations about who they knew of who might be able to do home visits on a private basis. She comes once a fortnight and the rest of the time my PAs do any stretching I feel I need.
A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams