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PEG feeding tube..

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  • February 1, 2012 at 4:30 pm #74226
    PEG feeding tube..

    Hi everyone

    My son (Max) had a PEG feeding tube fitted 8 days ago, we was told that the pain will go away after a few days but now 8 days on and he cries every time we sit him in his chair saying he is in pain, but soon as we lay him down again all is fine..
    i would like to know if anyone else has expirenced this,
    it is becoming hard to know if it hurts as much as he says it does or is it just discomfort or maybe fear of this new thing on his tummy…

    hoping there is someone out there that can help

    Darrenfpw
    Participant
    Posts: 1
    Joined: 01/02/2012
    June 21, 2012 at 1:27 pm #84280
    Re: PEG feeding tube..

    Hi
    I don’t know anything about your son – mine is 4 and had a peg fitted last november.
    It took days before he would sit up as he has lumbar lordosis and sticking out his belly made it hurt
    more. It was just a slow and steady thing and after a while it doesn’t hurt anymore. It took a lot longer than
    we thought it would though and the length of time off his feet has had a real impat on him.
    I hope your son is doing better x

    amymorris
    Participant
    Posts: 24
    Joined: 30/10/2011
    July 3, 2012 at 7:03 pm #84281
    Re: PEG feeding tube..

    @amymorris wrote:

    Hi
    I don’t know anything about your son – mine is 4 and had a peg fitted last november.
    It took days before he would sit up as he has lumbar lordosis and sticking out his belly made it hurt
    more. It was just a slow and steady thing and after a while it doesn’t hurt anymore. It took a lot longer than
    we thought it would though and the length of time off his feet has had a real impat on him.
    I hope your son is doing better x. If you have questions, please let me know, will try to answer them.

    Hi. How long will it be before it doesn’t hurt any more? My son has had one since this past March and he is in a lot of pain. lumbar lordosis patient also.

    smartuser20
    Participant
    Posts: 1
    Joined: 03/07/2012
    July 16, 2012 at 2:33 pm #84282
    Re: PEG feeding tube..

    To be honest i can’t remember the exact time frame – it always feels longer than it is.
    Probably a good few weeks before it didn’t hurt as much but my son was very aware of it and very sensitive to it.
    He would often be saying ‘Ouch’ before we even did anything so sometimes it seemed more the fear of it rather than actual pain. It was a few months before he slept on his tummy again or tried getting downstairs/off chairs etc which he always did on his belly. It has been 8 months now and he has been fine for ages.
    If you have concerns though i would book back in with the people who fitted it. And keep pushing til they see you.
    We had his tube changed for a button in february (3 months later) and by then all was fine and they checked him out when they did the switch over.
    Good luck – it is a much more traumatic time than anyone is prepared for!

    amymorris
    Participant
    Posts: 24
    Joined: 30/10/2011
    October 24, 2012 at 12:34 pm #84283
    Re: PEG feeding tube..

    It took quite awhile for my daughters to settle down, she wouldnt lay on her tummy for nearly a year later, which before she was a tummy sleeper, she didnt like me putting her tube in, we started with a Mic-key button now have a bard. It might feel weird in his belly or maybe pinching somewhere. Get the docs to check it out just in case. My daughter is 4 years ols and has Mulicore myopathy and Arthrogryposis.

    Coraley
    Participant
    Posts: 2
    Joined: 20/04/2011
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