Home > Topics > Muscular Dystrophy UK – General discussion boards > Caring for someone with Muscular Dystrophy

Parent’s meetings

Viewing 2 posts - 1 through 2 (of 2 total)
  • March 4, 2011 at 9:47 pm #73550
    Parent’s meetings

    My son was recently diagnosed with Facioscapularhumerol Muscular Dystrophy.Hopefully I’ve spelt that right. I have heard that there are meetings at Great Ormond Street Hospital for the carers of children with Muscular Dystrophy. Does anyone know when the next one is scheduled to take place? We live in North London…
    Thank you very much in advance. I could really do with learning a bit more about what is going on.

    BudgieMum
    Participant
    Posts: 3
    Joined: 04/03/2011
    March 7, 2011 at 10:58 am #79432
    Re: Parent’s meetings

    Morning BudgieMum,

    Have you been introduced to Martin Chainani, the Care Advisor at Great Ormond Street? I’m sure he can give you information about events at GOSH. He can be contacted on 020 7405 9200 ext. 0529 or chainm@gosh.nhs.uk

    There is also a very active national FSH Support Group that offers support and information to people with FSH, as well as their carers, family and friends. You can contact the Chair, Karen Bayliss for more information at karen-fsh@hotmail.com or visit:
    http://www.fsh-group.org

    Hope this helps, feel free to contact me if you have any other questions.

    Claire

    clairemdc
    Participant
    Posts: 5
    Joined: 19/10/2010
Viewing 2 posts - 1 through 2 (of 2 total)

You must be logged in to reply to this topic.

Keep in touch