Parenting by Dads with BMD

Hi Charlie

I don’t have becker but I have mild LGMD2L which is most mildest form apparently but I suffer some issues you mentioned. I’m just a little older than you with 2 young kids and I’m a full time single parent.

My condition was late onset and I was near athlete level fitness in my teens and early 20s hence this diagnosis was a complete shock.

My life was up to this great, I had a great job, home, traveled the world and was in a great place in life then it got derailed with this condition.

While going through the stages of what MD I had I did not care so much as it would effect me but was
Total concerned I have passed it onto my children.

The diagnosis was a subtype inwhich I could only pass on the carrier gene and not effected gene which was my main concern

I understand becker is different so you are probably aware I would advise on genetic counselling to see what chances of passing this condition on is and what options you have.

Next I would think about housing like a bungalow is more suitable. I live in a house but had a rear extension built so my bedroom is on the ground floor.

As for being a parent it’s hard sometimes, my daughter was young and at a park she opened the gate and run off to chase a cat and as I can’t run it was tiring to get her and I felt guilty. I’m tired a lot physically drained. I’m lucky I could carry my kids on shoulder for walks in early years but know I can’t.

Correct planning makes easier life, I don’t let this condition take control of my life and carry on as much as normal, some days my knees give way when lifting heavy itemms, its reminds me it’s there.