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Other partners of men with Duchennes out there?

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  • March 16, 2012 at 4:02 pm #74305
    Other partners of men with Duchennes out there?

    I just wanted to talk with someone in a similar situation.

    I’ve recently become romantically involved with a long-time friend who has been living with Duchennes. I have some things I’d just like to talk over with someone who might understand my situation. I loved my friend as long as I’ve known him, but now I find myself in love with him, and he is in love with me.

    Thanks

    Sarah

    SarahC
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    March 16, 2012 at 5:13 pm #84835
    Re: Other partners of men with Duchennes out there?

    Ask away .. there are not too many here with Duchenne but plenty with relationship experience.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
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    March 16, 2012 at 5:42 pm #84836
    Re: Other partners of men with Duchennes out there?

    I don’t think there are specific questions I want to ask just yet. He’s 30 and of course we don’t know how much time we may get with each other, but then who does?

    He lives in another country but is moving to the UK as he has a passport which would allow him to work and live here. I don’t know how the situation with healthcare will work out though, as I’m not sure what his rights are in accessing national health services – so that’s worrying.

    We are hoping to live together if he can get here. I will have to think about all the practical aspects such as accessible housing, transport etc. He is hoping he will get work (and it is possible with his field) and we are going to try to figure things out together.

    I thought if there was someone else about who has a similar life experience we may be able to support each other. Or alternatively if someone with Duchennes can share their experience of setting up with a new partner that would be helpful too.

    Thanks :)

    SarahC
    Participant
    Posts: 2
    Joined: 16/03/2012
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