New parent

Hi , my name is Karen and i am a volunteer befriender for Scope UK. I am currently supporting a mum who’s son has had a fairly recent diagnosis (one year ago )of a Muscular Myopathy. Still testing for specific condition. Mum has asked could i try and get some information or support from a forum on her behalf, which i am happy to do. From researching on line i can see the many varying types and effects depending on which strain it is and as mum does not have a firm diagnosis yet i am wary of delving too deep or going down the wrong path completely. She is a strong person but is finding it hard to deal with at the moment which is understandable. Her son is now 12 and at times throughout the day may use his wheelchair,he is in a mainstream school with a resource centre attached. What i would like is to be able to find some help and support locally for her where she can discuss her concerns and then once an eventual diagnosis is determined by the consultant we can go from there. Mum lives in Liverpool , she drives and can access any groups that are available to her. Any ideas or suggestions would be greatly recieved ! Thankyou for taking the time to read this.

Karen.