January 18, 2023 at 7:29 pm #202783New blog from someone with LGMD
Absolutely no idea if this is allowed on here but here we go anyways.
I have created a website where I plan on posting regular blogs. The below is a first instalment and it only felt right that I started with my journey of being diagnosed.
The long term goal is to not only help others, by hopefully reading my journey and gaining a bit of perspective from it, but also as a bit of self help, where me voicing what’s happened/happening and other things, will hopefully help me help myself.
For anyone interested, heres the link to my first blog post: http://bit.ly/BeingDiagnosed
JonnoJonno118ParticipantPosts: 0Joined: 08/02/2017January 19, 2023 at 7:02 am #202784Reply To: New blog from someone with LGMD
You are very lucky to have your fiance and child in your life, I know how much I wish things had worked out for me and my ex wife but life goes on. My daughters are thankfully doing very well, and I never grudge the fact they don’t live close by.
If writing this blog helps you and others, then I certainly wish you every success.
All the best
RanaldranaldParticipantPosts: 747Joined: 05/09/2010January 19, 2023 at 9:59 am #202785Reply To: New blog from someone with LGMD
Thank you Ranald, I appreciate you taking the time to read it and thank you ever so much for the kind words. I really do believe I am lucky to have them both in my life. I’m sorry to hear that your relationship broke down.
It’s good to know that they are doing ok, and with the internet the way it is, at least you can maintain a relationship even with some distance. Before my dad passed, he spent 7 years in Australia. We managed to maintain a relationship with that distance between us, with phone calls most days and Skype calls over the weekend.
Wishing you happiness in whatever you find it.
JonnoJonno118ParticipantPosts: 0Joined: 08/02/2017January 19, 2023 at 12:41 pm #202786Reply To: New blog from someone with LGMD
A novel approach. I do wish you every success and hope it leads to the goals you need.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015February 28, 2023 at 12:45 am #202807Reply To: New blog from someone with LGMD
Just had a look,good honest information
what a sh@t show your local council informed you to go leave your home to shower at a homeless showers facility rather than fit a stairlift.
Try not to risk at all falling, I know a guy who also has LGMD he fell and broke his leg. Once Broke and in cast he never regained walking ability as muscle weakness and inactive in cast will do that
A fall will basically mean wheelchair for life in our cases.Tomtom01ParticipantPosts: 0Joined: 27/02/2023
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