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My life with FSHD in India

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  • December 15, 2013 at 8:31 pm #75148
    My life with FSHD in India

    Hi everyone am Puneet 27yrs old male from India….I was having Fshd symptoms since my childhood when i was in school people bully me as i was thin so i always keep on dreaming when i become big i will go gym start pumping my muscles but i didnt know what was ahead…when i got into 11th standard i started going to gym (i was one of the top runners in school) but nothing improved so stopped going….then life was smooth then after two yrs my left arm biceps became too weak that i was not able to lift a kilo with it so i consulted several doctors some said it is weakness just go to gym n exercise but nothing happened. After some time i went to physio she told me to go neurologist there i was diganosed FSHD….

    Now from that day till now its been 8 yrs i went into depression and OCD (Obsessive–compulsive disorder) coz of depression also thought doing suicide….till now icant lift my hands up the shoulder, difficulty in walking n some more symtoms, i cant even concentrate i have family business but i cant concentrate on that am so much worried what to do….daily talking anti depression tabs….

    Regards
    Puneet

    puneet
    Participant
    Posts: 1
    Joined: 15/12/2013
    December 15, 2013 at 10:01 pm #92678
    Re: My life with FSHD in India

    Welcome to the Forum Puneet. We are very glad you have found us.

    Thank you for your very brave post.

    You have had a very tough time!

    Many of us will identify with parts of your experience but I am sure none will have gone through it all.

    The good thing is that you do have a diagnosis of FSHD. This will mean that you will understand your condition
    and what is happening in your life and hopefully that because of this people will be more understanding in
    the future. We know that even the average Doctor in any country will not understand or even have met
    a patient with your condition, so it will not be easy.

    Here is our page on FSHD http://www.muscular-dystrophy.org/about_muscular_dystrophy/conditions/99_facioscapulohumeral_muscular_dystrophy_fsh . Please browse the site and feel free to ask any
    questions you want. We have several members with FSHD who will be able to give you
    first hand advice.

    If you are having a tough time and just want to vent your feelings we hope we would
    understand and try and get you through it.

    I know the concentration problem can be just awful and people around just will not
    understand it fully.

    Thanks for contacting us.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    December 16, 2013 at 8:28 pm #92679
    Re: My life with FSHD in India

    Here is the website of the Muscular Dystrophy Foundation of India :-

    http://www.mdfindia.org

    And the Muscular Dystrophy Association of India

    http://www.mdindia.org/index.php

    Just in case you do not have them.

    They have a lot of good information and services.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
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