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Miyoshi Myopathy

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  • December 10, 2010 at 12:29 pm #73382
    Miyoshi Myopathy

    Hi I’m Rachel and am new to the site. I have had myoshi myopathy for the past ten years. Find it also very hard when cold, and have found heat bags that you put in the microwave excellent to go to bed with. Finding it now very hard to go up and down stairs and need the aid of my stick and braces. If anybody has or can give me more info about myoshi mypoathy please post me a reply. thanks alot! :)

    Hello Rachel and welcome to TalkMD

    I have done some site googling and mild digging, while I have found a couple of interesting articles about research, I have not found a specific area of our main site about MM but it does seem to be closely linked with the Limb-Girdle MD.

    Gene Responsible

    Investigating dysferlin role

    Anyone else help shed some light?

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
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    December 16, 2010 at 2:36 pm #78101
    Re: Miyoshi Myopathy

    Hi! I have done some searching and come up with this informative and easy to understand site, as with many of the muscular disorders ut is the pattern of weaknes, which muscles where & when affected that determins the classification.
    I hope it helps!

    http://m.zimbio.com/Muscular+Dystrophy+Association/articles/9/Muscular+Dystrophy+Miyoshi+Myopathy+Difference

    sorry I don’t know how to highlite it as a link but if you cut & paste it into the search box it should work! :D

    Shellybear
    Participant
    Posts: 364
    Joined: 09/12/2010
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