My son aged 6 has been recently diagnosed with DMD. We are now at the stage where we need to decide on his medication. Medication that has been put to us is the steroids Deflazacort or Prednisone. It’s a tough decision to make, at the same time where thinking we want the best for our son but do we really want him to go through all the side affects that come along with it. I appreciate all medication has side affects I know that but some of them are really bad. We are absolutely devastated about this but we just need to be strong for our boy. I am just posting to see if anybody else has decided to go against the steroids and maybe use other medication? Or maybe have used steroids and they have been fine?
We do a lot of stretches and exercise,and he loves swimming 😊.
Any information would be much appreciated, thank you.