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Limb Girdle Muscular Dystrophy 1C

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  • September 28, 2010 at 9:30 am #73239
    Limb Girdle Muscular Dystrophy 1C

    Hello,
    I was diagnosed with lGMD1C in 2003, I suffer from chronic pain and would like to hear from anyone who has the condition.

    missmolly
    Participant
    Posts: 3
    Joined: 28/09/2010
    September 28, 2010 at 11:29 am #76798
    Re: Limb Girdle Muscular Dystrophy 1C

    Hello Miss Molly. We will do our best to contect you with fellow LGMD people as they join us :)

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    September 28, 2010 at 11:53 am #76799
    Re: Limb Girdle Muscular Dystrophy 1C

    Hi Molly, I have LGMD but I don’t suffer pain with it however I do get days when things take a bit longer because of tiredness.

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    November 20, 2010 at 9:13 pm #76800
    Re: Limb Girdle Muscular Dystrophy 1C

    Hi,

    I have LGMD 2B and i suffer with pain in my feet and knees, more so when it is cold. I am 24 and had MD for about 5 yrs, I would love to chat about life in general and MD, swap things we both may have learnt etc. I hope u are well.

    Regards Robyn :)

    rumami
    Participant
    Posts: 2
    Joined: 18/10/2010
    November 24, 2010 at 3:07 am #76801
    Re: Limb Girdle Muscular Dystrophy 1C

    I and my two brothers also have limb girdle type of muscular dystrophy.Do you people know about gene therapy I think only it is the way in future by which we will get treatment.we are very much hope full what about you people do you know about it.It was started in 2008 and will be expected to compelet in 2012.Till then we all have to wait and also will request them to make it possible as soon as they can.I also have pain in knee not permanently occasionaly when I get flu after it this pain and swellings start.I use only pain killers like disperol and bandages for it and after two or three weeks get relief.what about your pain ans me.

    fizamama
    Participant
    Posts: 11
    Joined: 17/10/2010
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