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kids make fun of her

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  • August 30, 2011 at 8:39 am #73911
    kids make fun of her

    My 11 year old daughter has Limb Girdle MD. She was diagnosed last summer. Today was the first day back at school and she came home crying because no one would sit by her or walk with her because she walks funny and they laughed and pointed at her. Any parent know how I should handle this or of any books to read to her class that might make them understand she can not help it. My daughter is also deaf with a cochlear implant and has had to educated classmates on her implant but this time it just seems to much for her and it is breaking my heart :cry:

    smisso
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    August 30, 2011 at 5:13 pm #81946
    Re: kids make fun of her

    Kids can be so cruel at times! It might be worth having a word with her teacher to see if she can help or offer advice. What about if the teacher maybe spent half an hour doing a little topic on LGMD, kinda like a show and tell.

    There is the following site which may help Bullying UK

    This is a book list put together by Birmingham council Book List

    I hope these help. If I find any other info I’ll post it here.

    Vicki
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    August 30, 2011 at 5:48 pm #81947
    Re: kids make fun of her

    I was bullied badly in school by other kids for being ‘slow’ and not talking right, so I can understand how she feels. She is lucky to have a parent like you that cares and loves her as much as you do and that will help her enormously. Like Vick said try talking to teachers etc. and if that fails make an official complaint to your local LEA.
    What I found that helped is having an outlet. I used to go to a club for disabled kids after school and at weekends and there you could just blow of some steam and chillax. It might be an idea to see if you have any such clubs in your area. Also try getting your daughter to start a diary or journal and get her to write, draw anything that helps get all the hurt out
    and how she is feeling. You can then take that to the headteacher and be able to discuss everything with her.
    Above all else don’t let her see you upset by this, she will feel guilty (I know its hard but try :-)) keep happy and keep fiighting you will get there.
    Nat

    skel2
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    August 30, 2011 at 6:34 pm #81948
    Re: kids make fun of her

    Where abouts in the country are you smisso? I went to Phab (Phiscally Handicapped And Able bodied) club when i was your daughters age, maybe this might help too, I’ve put a link below :)

    Phab

    Vicki
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    February 9, 2012 at 6:30 pm #81949
    Re: kids make fun of her

    i would advise that if you want to do a class talk that you do it yourself. the deput head teacher at high school took it apon himself at an assembly to do a talk to everyone on my high school about me and my conditions during the the week i was off getting my scoliosis spinal fushion. he clearly didnt do any research and made a mess of it mixing everything up. luckely my freinds where already well aware of my conditions and the effects. he even implied i would have learning difficulties and a wheelchair when i returned.

    Judy Blume wrote a good book called deenie about a girl and her family learning to live with scoliosis. I read this years before even knowing scoliosis was an MD possibility and it helped me alot.

    Cat
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    February 26, 2012 at 8:17 pm #81950
    Re: kids make fun of her

    i AGREE with Vicki too, my son was teased at 8years old with MD at how he walked funny. I had a word with the head teacher and they did an information day in assembly and had activities to raise money for the muscular dystrophie campaign. All the children then knew what was wrong and were encouraged to help him rather than make fun of him. He was also made a reader monitor listening to the younger children read once a week. :D :) :shock: :lol:

    sandylou12345678910
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