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Just found out

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  • January 19, 2017 at 5:36 pm #146608
    Just found out

    Hello

    I have just been diagnosed with Myotonia dystrophy and was hoping i could talk to someone who also has the condition for some support and help

    ashepherd87
    Participant
    Posts: 0
    Joined: 19/01/2017
    January 19, 2017 at 6:54 pm #146609
    Reply To: Just found out

    Hi and :welcome:

    There are a few different channels. We have other members on the forum with your specific condition so keep an eye on this thread.

    In addition you could contact the relevant information officer for your area who may be able to put you in touch with others who have Myotonia Dystrophy.

    List of peer information officers

    There are also regional Muscle groups that meet up and you can can find a list of Regional Muscle Groups

    Please also feel free to ask questions here. There can be crossovers between conditions and our members have a wealth of knowledge on all sorts of subjects.

    Glad you have found us :)

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    January 19, 2017 at 7:48 pm #146620
    Reply To: Just found out

    :welcome: to forum

    Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    January 20, 2017 at 1:55 pm #146693
    Reply To: Just found out

    Hello and welcome. I am sure you will find someone on here to talk to and as you have seen from Sar78 there is already a list of places to explore.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
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