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Fresh blood…newbee joins

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  • October 22, 2015 at 9:35 am #81462
    Re: Fresh blood…newbee joins

    @onlyhuman wrote:

    HEY EVERYONE

    Sorry if i’ve posted this in the wrong section. So i’m 22, female and from London. I don’t have muscular dystrophy but I have charco-mariet-tooth disease which falls under the umbrella of muscular dystrophy but it is not severe. I’ve joined this forum as the ones for CMT sufferers don’t seem very active. Although saying that I only thought to join them this morning haha i’m impatient! Erm I have tended to isolate myself my whole life since leaving school and stuggle to make connexions since I rarely ever go out on my own.

    I’d really like to talk to people that can emphasise with what it’s like to feel so tired all the bloody time! It would be nice to make some friends whether that be online or meeting up in person potentially.

    If you’d like to talk sometime feel free to PM me…happy to talk about anything

    Thanks for reading!

    Onlyhuman x :D

    Hello Only human, hope you are ok? you finding the forum useful.

    Andy

    AndyWheels
    Participant
    Posts: 5
    Joined: 22/09/2015
    November 12, 2015 at 1:04 pm #103347
    Reply To: Fresh blood…newbee joins

    Hi Becky, and welcome. Never ever give up fighting to be who and what you want to be, because you can get there in the end. If you give up fighting for what you want you admit defeat and you are far too young for that. Even now, as old as I am, I still fight to be what I want to be despite odds stacked against me. In some respects I quite enjoy the battles with those who feel I should give up and be more relaxed, and accept what I can and cannot do. Why should I accept it? Dont you either! Live your life to the full

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    January 2, 2019 at 11:51 pm #165782
    Reply To: Fresh blood…newbee joins

    Ahhh only just seen this 3 years later lol! But I’m back again and plan to stay longer 5his time. Thank you for your support Mike, it really cheered me up 😊 I hope you’re doing good :yes:

    Mrs J
    Participant
    Posts: 3
    Joined: 27/09/2015
    January 25, 2019 at 12:21 pm #174929
    Reply To: Fresh blood…newbee joins

    welcome back

    how are you doing 3 years on

    Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    January 25, 2019 at 12:37 pm #174930
    Reply To: Fresh blood…newbee joins

    Welcome back. I am still fighting, it seems with everything. From my chicken in the morning (who is really grumpy) to medical professionals everything is a battle. Please do stay longer and contribute lots. We wold all love to hear how your are getting on fighting CMT.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
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