I believe the Southern has a Geneticist to attends the Muscle Clinic might be worth asking to have a chat. I think if your family could be affected then at least a discussion about risks and testing might be in order. The testing can only be done if they know the type to look for. I was denied discussion with a Geneticist as my type is unknown. It does worry me know.
Let me know how you get on but I do think you should pursue it.
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