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Experience /help with a dual diagnosis

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  • August 23, 2015 at 1:38 pm #75653
    Experience /help with a dual diagnosis

    Our family is currently trying to educate ourselves regarding a dual diagnosis for our child. Genetic testing revealed a Centronuclear Myopathy ad, paired with Limb-Girdle Muscular Dystrophy ANOC5. Symptoms were evident by 8 yrs old….. is there anyone out there that has experience with a dual diagnosis like this, and or aware of research to help us with this process?

    OKfam
    Participant
    Posts: 1
    Joined: 23/08/2015
    September 1, 2015 at 3:02 pm #96806
    Re: Experience /help with a dual diagnosis

    Hi Okfam,

    How are you today?

    Would it be possible for you to call the freephone helpline 0800 652 6352 so we can point you towards the right literature.

    Many thanks,

    Alexa

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    September 2, 2015 at 3:20 pm #96807
    Re: Experience /help with a dual diagnosis

    I am wondering as they joined in the wee hours of the OK stands for Oklahoma?

    Maybe http://www.mda.org will have info about help in the USA.

    Or there are our downloadable leaflets available HERE

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    October 29, 2015 at 8:32 am #96808
    Re: Experience /help with a dual diagnosis

    Our family is currently trying to educate ourselves regarding a dual diagnosis for our child. Genetic testing revealed a Centronuclear Myopathy ad,

    David405
    Participant
    Posts: 1
    Joined: 29/10/2015
    October 29, 2015 at 11:34 am #96809
    Re: Experience /help with a dual diagnosis

    Hello David, there can be so much to take onboard after a diagnosis [or a presumed one, MD is a tricky thing to corner] … take your time and come back ask questions, we will try and answer them or point you in the right direction.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
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