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DMD Family groups??
Hello,
Our son has been diagnosed with DMD, is there anywhere in the Surrey/Hampshire area where we can meet with other parents and where our son can mix with other kids going through the same thing?
Ryan and Julie
Re: DMD Family groups??It might be worth having a look on the MD Campaign site at their map, it gives details of events up and down the country. I’ve put a link below.
Re: DMD Family groups??Hi Ryan and Julie
I know of one group called the Duchenne Family Support Group. I think there are a number of others, I know this particular group as I know a parent who is involved, I think she is the chairperson. There is a page on the website I have linked to called “Contact Families” which gives details of other families in your area.
Best Wishes
Sarah
A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams
Re: DMD Family groups??Hi again
I have just found out that their website is undergoing maintenance at the moment. If you would like to be put in touch with my friend, who I have checked is the chairperson, then let me know and I will send you a private message with her email.
A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams
Re: DMD Family groups??The disease was first described by the Neapolitan physicians Giovanni Semmola in 1834 and Gaetano Conte in 1836.However, DMD is named after the French neurologist Guillaume Benjamin Amand Duchenne (1806–1875), who, in the 1861 edition of his book “Paraplegie hypertrophique de l’enfance de cause cerebrale”, described and detailed the case of a boy who had this condition. A year later, he presented photos of his patient in his “Album de photographies pathologiques.” In 1868 he gave an account of 13 other affected children. Duchenne was the first who did a biopsy to obtain tissue from a living patient for microscopic examination.
Re: DMD Family groups??Hiya,
I don’t know how far yu are willing to travel but a group of us meet up once a month in Southsea and you’d be most welcome. The group is called Eddy’s.
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