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  • #187023
    Ck test

    Hello
    I want to ask about my child he is 2year and 8 month old someting when he run he felldown I consulted a dr he he done cpk test the test result was 338 is there sth to worry plz sb answer.

    Shabeer .Ahmed
    Participant
    Posts: 0
    Joined: 05/04/2020
    #187030
    Reply To: Ck test

    Hello Shabeer, I have Becker Muscular Dystrophy and so only know about that.

    BMD affects sufferers usually in later life. You can be asymptomatic for decades; I wasn’t diagnosed until the age of 28. The condition is a similar form of MD as Duchenne, but less severe. I am nearly 45 and am expected to have a normal lifespan, but use a walking stick as of late.

    As for CK count, I seem to remember the number as in the thousands, not hundreds, but it varies from person to person. Importantly, CK can leak into the blood from damaged muscle or an infection, too much exercise etc. Not necessarily proof of MD. I was told my very high reading (in the thousands) removed any doubt.

    Try not to worry too much until a definite diagnosis is given. (Easier said than done I know)

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
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