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Charcot Marie Tooth Disease

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  • March 20, 2012 at 5:03 pm #74318
    Charcot Marie Tooth Disease

    Hi…I am new to this website and forum…I’m basically trying to see if i can reach out to other people that are in northern ireland and also have CMT?

    DeeNIreland
    Participant
    Posts: 4
    Joined: 20/03/2012
    March 20, 2012 at 10:20 pm #84913
    Re: Charcot Marie Tooth Disease

    Hi Dee

    Welcome to the forum, I can’t remember off the top of head if we have any other CMT people :oops: I’m sure they will be along if we have though. :D

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    March 21, 2012 at 5:25 am #84914
    Re: Charcot Marie Tooth Disease

    thank you….i really do hope so, trying to reach out to others that have the same condition :)

    DeeNIreland
    Participant
    Posts: 4
    Joined: 20/03/2012
    March 21, 2012 at 2:52 pm #84915
    Re: Charcot Marie Tooth Disease

    Not altogether sure we have many CMT-ers from NI

    *waves* helloo

    Have you dome across the MD Links service? It aims to put people with the same condition together for emails and telephone friendship and support. You can find the details on the MD Links info pages

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    March 22, 2012 at 11:03 pm #84916
    Re: Charcot Marie Tooth Disease

    thank you i’ll have a look…kinda feeling very isolated with this condition, it’s getting me down now…few new friends would definitely help

    DeeNIreland
    Participant
    Posts: 4
    Joined: 20/03/2012
    March 23, 2012 at 11:02 am #84917
    Re: Charcot Marie Tooth Disease

    @deenireland wrote:

    thank you i’ll have a look…kinda feeling very isolated with this condition, it’s getting me down now…few new friends would definitely help

    We can all empathise with you there, it seems they find different varients year on year. The name of your variety has always intrigued me, lol, just looked on wikipedia, it is made up of the surnames of the three people who classically described it.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    March 25, 2012 at 2:59 pm #84918
    Re: Charcot Marie Tooth Disease

    Hi Dee
    Welcome to the forum. I have Mitochondrial Myopathy and within that I have all the symptoms of CMT. I live in Dorset but would be happy to chat if you would like.

    Val

    Valerie
    Participant
    Posts: 166
    Joined: 15/09/2010
    April 12, 2012 at 10:49 pm #84919
    Re: Charcot Marie Tooth Disease

    Hi I live in South Yorkshire Sheffield, and I have cmt if you ever want to chat feel free to message me. x

    Anonymous
    Inactive
    Posts: 0
    Joined: 01/01/1970
    August 23, 2012 at 10:34 pm #84920
    Re: Charcot Marie Tooth Disease

    I have cmt and live in carrickfergus northern ireland. im 26 male.

    Anonymous
    Inactive
    Posts: 0
    Joined: 01/01/1970
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