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Carer's Interview

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  • February 8, 2018 at 2:43 pm #154343
    Carer's Interview

    I am helping put together One Voice, a magazine compiled and published by the Neuromuscular Centre in Winsford. The next edition is to include interviews with carers, family, friends, PAs etc. IS anyone out there preoared to stick their neck out and answer a few questions please? Anonymously if necessary. AS you can appreciate such insights can be very helpful to those who are newly diagnosed.

    Mike

    So many love songs, so little love.

    embayweather embayweather
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    February 12, 2018 at 10:22 am #154377
    Reply To: Carer's Interview

    I’ll ask my PAs.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
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    February 12, 2018 at 1:04 pm #154406
    Reply To: Carer's Interview

    Thank you so much, it really will be of interest to many.

    Mike

    So many love songs, so little love.

    embayweather embayweather
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    April 4, 2018 at 4:02 pm #155577
    Reply To: Carer's Interview

    I have been sent a list of questions from the NMC, if you could pass them on to your carers and let me have a response back sometime next week please. I think you may have my home email address.

    How has life changed since a diagnosis of Muscular Dystrophy in your family?

    What information, services, support have you found helpful?

    What information or support would have made your life easier?

    How did you hear about the NeuroMuscular Centre and how has the Centre helped you?

    Were there any unexpected positives?

    What do you do to look after yourself?

    Many thanks

    Mike

    So many love songs, so little love.

    embayweather embayweather
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    April 4, 2018 at 4:53 pm #155584
    Reply To: Carer's Interview

    Hi,

    Does it have to be carers of people that have been that particular centre?

    Also, those questions seem to be geared towards relatives who are carers rather than PAs?

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
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    Posts: 2,246
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