Viewing 4 posts - 1 through 4 (of 4 total)
  • #202395
    Calf Pain

    I have been suffering of late with pain in my lower legs, that is they feel like they are filled with concrete.

    My calves are massive they always have been, it is called pseudohypertrophy. They are now sore to the touch and feel hard. They ache when walking or sitting, I can’t get any relief. They might even be enlarging as I can hardly get a pair of jeans over them!
    I told the genetics nurse, who had a word with the neurologist. The neurologist says she will add paracetamol to my gabapentin prescription.
    Now I don’t want to appear unduly skeptical, but paracetamol? The gp and neurologist just seem so reluctant to discuss anything stronger. Surely 6x300mg gabapentin tablets a day isn’t all that excessive?

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
    #202396
    Reply To: Calf Pain

    Hi ranald

    I had a issue unrelated to MD but high pain and they said to take paracetamol also and it’s all they prescribed ….. I looked back at them as in high pain and said paracetamol :shock:

    After coming back the next day in even more pain I go Opioid based pain killers which work perfectly

    Anything less than prescriptions level pain killers are a joke when in real pain

    Joe
    Participant
    Posts: 0
    Joined: 01/01/2020
    #202398
    Reply To: Calf Pain

    Alright Joe?
    It can be a struggle to get them to take you seriously quite often, we just have to be persistent i suppose.
    The neurologist just sent me an appointment for her clinic in early March. That is encouraging at least what with covid scuppering the annual review these last two years.
    I think it is the disconnect between a healthy, attractive, I suppose quite sporty professional, and some hobbling, overweight, unemployed, socially isolated individual like me. It might be the ‘lost in translation thing’, but I usually get the impression that she thinks I just need to shake myself down and change my lifestyle. (Benefit claimants have pretty reduced horizons as my life experience can attest.)
    This time I am going to be more insistent that my pain is significant, in fact I have put up with it for to many years. I don’t know what is the next step up from gabapentin, but I want it!
    I keep hearing tge ciren call of tge mobility scooter, but I want to avoid that until absolutely necessary. I have been looking at a type of walker called a ‘Veloped’. It us expensive but would still get my legs moving rather than sitting all day.

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
    #202404
    Reply To: Calf Pain

    I totally agree, I used to trust Drs and GPS and all they said.

    This whole MD experience I have now come to the conclusion it’s not what’s in your best interest but what is in their’s

    The system is broken totally.

    Joe
    Participant
    Posts: 0
    Joined: 01/01/2020
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