Boyfriend with Becker’s MD?

I was present at a discussion yesterday about the need for more emotional support for dealing with MD both for people with the conditions and loved ones/carers. Things are improving but there is a long way to go. The Professor who was asked the question about why it was not available answered that it was a very important and overlooked aspect of support at specialist centres and something that he and his team constantly tell the purse holders but it needs more patient power, he urged us to write to the commissioners on such matters.

I remember a similar thread to yours a few years ago and acceptance is not something you can put into a timeline. I do not know what is is like to be a partner or family member of an MDer but I can only imagine how frustrating and heart-breaking it must be.

I’m probably biased here but online communities such as this can be a good way to keep some contact with a wider circle. With regard to support, does your boyfriend attend a Neuro clinic, would he feel comfortable saying that he is struggling?

Glad you to have you on board