Reply To: Awaiting diagnosis
Hello and welcome. Clearly you have a good neurologist who is keen to get to the bottom of the problem. The question of diagnosis comes up quite regularly on the forum, and you will often find very different rates of testing and diagnosis from area to area. You have already said how much is waiting on that decision for your son, imagine how it would feel if the diagnosis was wrong? Clinicians always take great care, and if necessary, some time, to get it right. Diagnoses, are by their very nature, often hard to pin down, because there may be so many complicating factors. Most everyone on here has experienced frustrating waits for an answer, and sadly you may well have to as well. You will of course appreciate, that the virus is clogging up almost every piece of NHS that it can, so it is possible that some, or all , of the delay may be attributed to that.
I am sure others may well pop up and tell you their experiences. You will get there.
Mike
So many love songs, so little love.