Home > Topics > Muscular Dystrophy UK – General discussion boards > Caring for someone with Muscular Dystrophy

3 year old son has just been diagnosed with DMD

Viewing 9 posts - 1 through 9 (of 9 total)
  • March 18, 2012 at 11:38 pm #74310
    3 year old son has just been diagnosed with DMD

    Hello out there,

    We recently found out that our son has DMD. We are planning on joining one or two of the support groups, but I thought I’d sign up for TalkMD too.

    If anyone has any helpful hints and tips on getting through the first few months, I’d be very grateful. At the moment we are doing well at staying positive and taking each day as it comes.

    However, he is due to start school in September and I have a meeting with the head teacher to explain things this Wednesday. I’ve printed off a load of info for him, but is there perhaps anything else I should bear in mind?

    Many thanks

    dizzydawn
    Participant
    Posts: 4
    Joined: 18/03/2012
    March 20, 2012 at 3:03 pm #84862
    Re: 3 year old son has just been diagnosed with DMD

    Welcome to the forum.

    I think the only thing I can suggest is to take time to digest the info you find. Give yourself time to adjust. Yes information is the key, there are some threads of interest about schools on the forum. If you can find a local group where you can face to face chat wth othe Mum’s that is a great way to share info and contacts as well as feel supported by those in the know.

    Good luck with the Hea visit.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    March 20, 2012 at 3:04 pm #84863
    Re: 3 year old son has just been diagnosed with DMD

    Hello DizzyDawn!

    My name is David Moore-Crouch and I work for the Muscular Dystrophy Campaign. Firstly I’d like to welcome you to TalkMD! One of my roles at MDC is to coordinate our work with schools and parents to help support children with MD. This work includes the Parents Education Network which is a thread on TalkMD. If you click on the tab ‘Parents talking about education and schools’ who can read about other parents issues with schools and post your own queries!

    I hope you find this useful! I look forward to seeing on PEN!

    AdvocacyDave
    Participant
    Posts: 32
    Joined: 09/01/2012
    March 20, 2012 at 11:33 pm #84864
    Re: 3 year old son has just been diagnosed with DMD

    Thank you AMGmod & Badger for your replies, we will definitely do as you have suggested.

    Regards Dawn

    dizzydawn
    Participant
    Posts: 4
    Joined: 18/03/2012
    May 28, 2012 at 7:27 am #84865
    Re: 3 year old son has just been diagnosed with DMD

    I suggest, you to adjust and do a regular praying session for your son. That’s the best thing to do to cure the illness. ;)

    ________________________________________

    Anonymous
    Inactive
    Posts: 0
    Joined: 01/01/1970
    May 28, 2012 at 7:38 am #84866
    Re: 3 year old son has just been diagnosed with DMD

    Just a quick note to say that our members and people who read these posts will have different beliefs and views. That’s the beauty of this place and it is important that we remain sensitive to others’ situations whilst offering our thoughts.

    T’is all for now. Hope everyone is enjoying the sunshine 8-)

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    May 28, 2012 at 9:23 pm #84867
    Re: 3 year old son has just been diagnosed with DMD

    I pray to the Great Green Arkleseizure.

    The creator of the universe, according to the people of Viltvodle VI. Their legend has it that the universe was sneezed out of the nose of the Great Green Arkleseizure, and they thus “live in perpetual fear of the time they call ‘The Coming of the Great White Handkerchief.'”

    Seriously though, i have a very religious mother but even she wouldn’t tell me to pray for a cure. To most rational people, that is a gross insult.

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
    June 2, 2012 at 4:45 pm #84868
    Re: 3 year old son has just been diagnosed with DMD

    i most defo agree with you ranald. the only praying ive done lately was to the big throne in the bathroom last sat night. having forgot im not 18 anymore and getting caught up in a bacardi and coke drinking comp. all i can remember is it tasted a damn sight better going down than coming back up. :lol:

    stefan

    littlestef
    Participant
    Posts: 526
    Joined: 04/10/2011
    June 2, 2012 at 10:36 pm #84869
    Re: 3 year old son has just been diagnosed with DMD

    Can’t be having that littlestef, not at today’s prices. What goes down, stays down! ;)

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
Viewing 9 posts - 1 through 9 (of 9 total)

You must be logged in to reply to this topic.

Keep in touch