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13mth old Duchenes

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  • December 7, 2013 at 2:50 pm #75136
    13mth old Duchenes

    Hi
    I posted back in September as my sister and her husband were at the start of the diagnosis process for there then 11 month old gorgeous boy….he was diagnosed on Monday at GOSH with Duchennes.
    All the information/ help is aimed at children 3 years and over and just wanted to know if any other families had such a young diagnosis and there experiences.
    Thanks.
    Eunice

    Eunice
    Participant
    Posts: 2
    Joined: 21/09/2013
    February 5, 2014 at 1:40 pm #92564
    Re: 13mth old Duchenes

    Hi Eunice

    I’m sorry it has taken a while to get a reply to your post. I have a contact for you and your Sister and family and I will send you details via a private message. A lady I know has given me her email address and is happy to share her experience of early diagnosis for her son.

    All the best :)

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
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