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Workshop Focused Solely on LGMD2A

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  • October 14, 2011 at 6:55 pm #74000
    Workshop Focused Solely on LGMD2A

    hello everyone

    this is the link about the workshop
    http://www.curecalpain3.org/scientists.html

    and this is the link about foundraising for the research
    http://www.crowdrise.com/adoptaresearchproject/fundraiser/coalitiontocurecalpa

    michael

    michael91
    Participant
    Posts: 1
    Joined: 03/01/2011
    January 15, 2012 at 10:27 am #82534
    Re: Workshop Focused Solely on LGMD2A

    Thank you for that, I also have LGMD2A. Will have a look. Have decided to stop accepting physical birthday and Christmas presents so have been looking for a pure research project I can have people donate to instead. :D

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    February 15, 2012 at 1:37 pm #82535
    Re: Workshop Focused Solely on LGMD2A

    Hi michael91,

    Do you know anything about the LGMD2a patient registry? http://www.lgmd2a.org/

    I have just come across the website, its one that we weren’t aware of.

    Best wishes,
    Kristina.

    kelvidge
    Participant
    Posts: 113
    Joined: 07/09/2010
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