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Son, 7, recently diagnosed with duchenne

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  • January 10, 2022 at 8:09 pm #202381
    Son, 7, recently diagnosed with duchenne

    No idea how to cope with this, how to explain to my little boy and how I make his life as normal as possible.

    kathynfreddie
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    Joined: 18/10/2021
    January 14, 2022 at 12:54 am #202383
    Reply To: Son, 7, recently diagnosed with duchenne

    Hi kathyn

    Yes I fully understand your situation as a parent myself.

    I think you should speak to your gp how you feel and see what help is available.

    Join duchenne groups and get advice from others.

    Hope all works out as best it can for you and your son

    Joe
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    Joined: 01/01/2020
    January 14, 2022 at 10:50 am #202386
    Reply To: Son, 7, recently diagnosed with duchenne

    I’m sorry to hear you’re finding it tough to cope with! We have a Facebook group for parents and there are lots of parents of boys living with Duchenne in there so if you use Facebook, I’d recommend joining – https://www.facebook.com/groups/mdukparentsupportgroup. You can also always call the MDUK helpline for support on 0800 652 6352

    calleyclay
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    Joined: 02/08/2021
    January 15, 2022 at 9:26 pm #202387
    Reply To: Son, 7, recently diagnosed with duchenne

    I’m so sorry to hear that your son has been recently diagnosed, my son is now 13 and was diagnosed with Duchenne as a a baby. If you’re on Facebook I admin the Duchenne Parents Support Group, we have over 1000 members, all parents of those with Duchenne in the UK and Ireland. You certainly don’t have to go through this alone x

    https://www.facebook.com/groups/DuchenneParentsZone/?ref=share

    KatR
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    Joined: 04/07/2019
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