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Hi Val,

I find massages help my circulation when I’ve had one which is not very often Pink plaster sounds cool better than the white one I had when I broke my arm many moons ago. How long will you be in plaster?

Hi Val

Where do I sign? I am ‘in’ for a regular massage, my sister too. Sure could cut the stress sick, depressed sick, circulatory sick lists down to size and be oh so nice!!

I am trying to localate a reasonably priced at-home pedicurist for similar reasons. It would improve my circulation, give a hard to reach area a good scrubbing and just be so wonderfully relaxing, envigorating and just something really nice.

@valerie wrote:

Hi AMG

Do you have feeling in your feet? Because I have no feeling from my knees down I am entitled to free chiropody at the GP surgery. I’ve not taken it up because I can still manage but I’m bearing it in mind for the future. Might be worth you looking into.

I do have full sensation but they are so very very cold all the time. My local GP surgery does have a chiropodist but they’re not doing house calls ‘yet’.

@valerie wrote:

Hi AMG

Do you have feeling in your feet? Because I have no feeling from my knees down I am entitled to free chiropody at the GP surgery. I’ve not taken it up because I can still manage but I’m bearing it in mind for the future. Might be worth you looking into.

Hi, on the subject of massge, I am sure it is helping me. This year I have had a lot of problems with foot/ankle/leg swelling. After ruling out cardiac and repiratory factors, it was put down to poor lymphatic drainage. I have been having a back and leg massage every 3 weeks and it does seem to be keeping the swelling at bay.

I have come to realise that feet are very important and it can make me quite miserable when mine are not right. One thing I thought worth mentioning is that I had a chirpododist visit about 4 years ago and I wish now I had explained that my skin, in some places, breaks down easily and takes a long time to heal. I had a build up of hard skin on one heel which she dealt with quite harshly and I have had problems ever since. At night, my heels are in constant contact with my mattress, as my legs are now a dead weight, the heel which she treated thus developed a pressure sore and it has never healed up. I didn’t blame the chirpodist but I am more aware that my body can react differently to conventional treatments.

Anyways… massage on the NHS? – I’m in!

Sarah x

@mesamb wrote:

Hi Ranald, welcome to TalkMD.

It’s good that you’re getting those benefits which you’re entitled to, although as you say, it doesn’t make the job search any easier. What line of work are you interested in?

And what are your interests outside of work, football, films, music?

Hi mesamb
I was a bus driver for 9 years and before that a truck driver, i don’t really have any other skills and i suppose i should be back to college to re-train but i have taken up until recently to get myself back together. It has been an eventful couple of years, loss of job, divorce and this BMD carry on to deal with but i will surely be ready for college next year as it is too late for this intake.
I would do pretty much anything that i was safe and able to do, applied to all the supermarkets, call centres and the like but not even an interview I have considered volunteering but TBH i am scared to do that in case i get shopped to the DWP as fit to work!
ESA was pretty difficult to claim and i am getting enough money when combined with my DLA but that doesn’t fill the day and i would really like to get back to full-time work ASAP but the type of employer that is traditionally disabled friendly in the Public Sector are paying off and not recruiting ATM. (Pensions Office, DWP, Jobcentre etc)
There are no easy answers and so many of us face discrimination in the workplace as well as society in general, disabled people are being mercilessly slated by certain Right Wing sections of the media and i know from a different site how vulnerable and scared many of us are feeling lately.

@ranald wrote:

I have considered volunteering but TBH i am scared to do that in case i get shopped to the DWP as fit to work!

Hi Ranald

I used to work within the DWP, although Incap [or ESA as it is now] was not my specific field I was familiar with the “Permitted Work” rules and the “Volunteer Rules” .. here are the pages on the direct.gov site, it may be worth asking at the CAB or your Advisor, but if you do volunteer work it ‘should not’ affect your benefit status and if nothing else plugs the cv and gives you a work related reference.

Volunteering while on benefits

Permitted Work

I appreciate this is all rather daunting, if you want impartial advise without going via the DWP, I cannot recommend CAB highly enough.

Hi Claire, glad you found us.

Congratulations on graduating! I think getting through university has been my biggest achievement too. What was your degree?

I am so glad to hear you have a good neurologist and got an accurate diagnosis – I can understand the relief you must feel (and I am sure many others here do as well).

Take care and enjoy the site,

Sarah x

Thanks AMG.
I appreciate you taking the time to reply but i am more than a little sceptical about Permitted Work since the ATOS fiasco, you can probably guess where i am coming from there!

I know what you mean about the gaps in the CV, i have been out of work for a year now and TBH am not really expecting to be back in work any time soon, especially now with young Gideon Osborne swinging his axe with gay abandon lol.

I tried to get to College this year but it was full due to the high unemployment, i need to get some relevant qualifications as i have only ever been a lorry or bus driver for a job and that is not exactly possible now with BMD.

Thanks again!

Ranald

Hello All , I am the wife of a Limb Girdle Type 2A sufferer ….. it has taken over a year to finally be given a type and have recently been up to Newcastle to the Centre of Human Genics where we were finally given some answers to our questions .. my husband and his younger sister both have the same condition but are affected in different ways.. My husband seems to be more affected than his sister.. and are now waiting to see a respiratory consultant Re: his sleepiness ……. He currently works as HGV driver and is finding his job increasingly difficult due to his symptoms so is looking at having to finish work ….. so now comes the help/advice i need …… does anyone know what benefits or entilements he might be able to claim he currently gets DLA and Carers allowance but thats all ……. Any advice would be a really big help as we don’t know where to start i am looking at getting job as the children are alittle bit older now so that he can give up work but making that move with no finicial backup is a worry ..a worried wife

Hi, My name is Traceyanne.

I met Sam at the MDC conference in Birmingham this weekend. He told me about this forum so thought I’d pop along and say “hi”. I have FSH-MD and I am the secretary of the FSH-MD support group uk. I am also an active member of the West Midlands muscle group. I recently attended the “kite appeal” launch in aid of the New Neuromuscular Center in Kings Norton, Birmingham and I am now part of that fund raising committee. I attend the Neuromuscular center at Winford and know just what a godsend that place has been to me, so I am really looking forward to the day when the doors open on the new center, hopefully early 2012.

I keep myself busy socializing with my friends, chatting on the internet and I’m also doing a graphic design course. Ooooh and I love shopping !

Traceyanne… TA.. for short x