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May 30, 2013 at 4:45 am #74880new to this site and looking for supportive new friends to
hey everyone,im new here,i have limb girdle md type 2a and am happy to have discovered this sight,i was diagnosed 8 years ago and i am 36 yrs old as of now but am recently experiencing an increase in the severity of my symptoms which are bewcoming very hard to deal with,so i am looking forward to meeting some new friends who can relate to what i am going through,and i look forward to hopefully helping out the people i meet as much as i am sure they will help me as well
May 30, 2013 at 9:02 am #89059Re: new to this site and looking for supportive new friendsHi Nathan, welcome to TalkMD.
This forum is a great place to share experiences, talk to others who are dealing with similar issues and as you say, support other people in return. Glad you have found us
A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams
May 30, 2013 at 1:21 pm #89060Re: new to this site and looking for supportive new friendsHi Nathan,
Welcome to Talk MD, I hope you find the site helpful. We’re a friendly bunch and everyone is always happy to offer support, advice and help, as well as chat about completely random stuff, so please do get involved!
May 30, 2013 at 7:46 pm #89062Re: new to this site and looking for supportive new friendsthanx for your replies guys,the warm welcome is really appreciated,i just thought i would stop in quick and see if anyone replied,so thanks again for all the kind words,I’ve had problems with having enough energy to stay awke very long lately,ive been sleeping 12-18 hrs a day, and when im awake im drained (not to be so depressing but its kind of the way it is right now) so i look forwqard to talkking to you sall when im not quite so sore,im anxious to talk with some of you and find out what symptoms some of you are going through as well to see if how im feeling is “normal” or not,but hope you all are doing well and i’ll talk to ya soon
May 31, 2013 at 2:54 pm #89061Re: new to this site and looking for supportive new friendsWelcome to the forum Nathan,
Sorry you are having a tough time.
Many of us have been posting on amazingly increased fatigue. Here is just one of the threads :-
viewtopic.php?f=50&t=3762&hilit=soul
"Even if you are not paranoid, it does not mean they are not out to get you!".
May 31, 2013 at 8:08 pm #89063Re: new to this site and looking for supportive new friendstough times are unavoidable i believe with a disease like this,but,i believe having an outlet like this site and the people on it to discuss and share these “tough times” with is a great healing process and a great way to help cope,thank you guys,i appreciate it infinately
June 1, 2013 at 9:12 pm #89064Re: new to this site and looking for supportive new friendsHello Nathan :
There has been a small clerical error and your account accidentally deleted.
Can you please register again?
"Even if you are not paranoid, it does not mean they are not out to get you!".
June 1, 2013 at 9:15 pm #89065Re: new to this site and looking for supportive new friendsThanks Taungfox for posting this
I sincerely apologise for the inconvenience this has caused Nathan. If you see this message, please do re-register and I will message your account as soon as it flags up on our system.
Muscular Dystrophy UK staff member
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