Viewing 4 posts - 1 through 4 (of 4 total)
  • #202703
    New to the Group

    Hi, my names Mandy and I have a 31 year old with Beckers disease. Diagnosed at 17, ended his golf “career” plans. Also suffers with social anxiety disorder so rarely goes out the house. No friends, no job. We got a dog 5 years ago and that has helped but still no nearer to him getting a job and getting on with life sadly.

    Since the pandemic he has not seen anyone or had any follow up on his condition. He is beginning to struggle more with balance and walking too far. I’m trying to get him to do some kind of exercise but the thought of it gives him anxiety attacks.

    I’ve been researching any facilities that are available to people with his condition. Specialists who might know of any treatments available or services available to him. Does anyone have experience of this?

    mandydbailey
    Participant
    Posts: 0
    Joined: 10/06/2020
    #202704
    Reply To: New to the Group

    Hi Mandy. My name is Emily. Sorry to hear of your struggles with you and your son :( I am 38 and was diagnosed with lgmd 5 years ago. I too was going to do golf as a career until injury took that away. I still play golf however it does get harder each year physically. I would be more than happy to speak with your son and try help anyway I can. Trying to deal with things mentally is so difficult. I also run my own business so know what employers are looking for with regards to getting employed. I would be more than happy to help with this :) if either of you want to chat then let me know :)

    Ems15
    Participant
    Posts: 0
    Joined: 31/07/2018
    #202708
    Reply To: New to the Group

    Hi Mandy. My name is Emily. Sorry to hear of your struggles with you and your son :( I am 38 and was diagnosed with lgmd 5 years ago. I too was going to do golf as a career until injury took that away. I still play golf however it does get harder each year physically. I would be more than happy to speak with your son and try help anyway I can. Trying to deal with things mentally is so difficult. I also run my own business so know what employers are looking for with regards to getting employed. I would be more than happy to help with this :) if either of you want to chat then let me know :)

    You are a really nice person, good on you!

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
    #202720
    Reply To: New to the Group

    Hi Mandy,

    He could take up Golf as a disability sport. many sports people at Olympic level have crossed from abled bodied to para sports for one reason or another. MD needn’t be end of his sporting dreams even if it meant exploring different sports as well as golf. theres para shooting, curling, Bowls, car racing.

    What area do you stay in? England has a muscle centre of excellence.

    Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
Viewing 4 posts - 1 through 4 (of 4 total)

You must be logged in to reply to this topic.

Keep in touch