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  • July 22, 2011 at 3:27 pm #73835
    new to here.x

    Hi there,
    Just new to this and thought i would share my story.i’ve been a carer to my mum and bother most of my life as they have both been diagnosed with MD,they are still having to under go tests as the doctors still aren’t sure of the correct diagnosis of MD. However they both have added complications as thoughout childhood my mum was always in and out of hospital and know one knew what was wrong with her, has she had MD all her life and noone ever picking up on this?. It wasn’t until my brother was born they started to relaise the same similarites to them both. My brother was also diagnosed with Acute Limphoblasitc Leukemia. We are just waiting to here the results of the tests don’t know how long this will go on for until they have the correct diagnosis. No matter what i will be there with them through it all. :) x

    rachelc10
    Participant
    Posts: 2
    Joined: 22/07/2011
    July 22, 2011 at 3:42 pm #81100
    Re: new to here.x

    Hello Rachel

    The story of your family’s diagnosis [or lack of] is pretty common place I fear. I myself did not get a definitive piece of paper saying that I definitely have FSHMD until into my 30’s when symptoms manifested was back before school days :roll: it is something that seems to take even longer as medical knowledge expands as well.

    Glad you found time to pop in and say hi, chime in anywhere we love to hear peoples experiences, opinions, ideas and grumbles.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    July 22, 2011 at 3:51 pm #81101
    Re: new to here.x

    Thank you for your comment. Yes we are just going to have to wait for the results on the tests, until they come to any conclusion for the diagnosis. I will do pop on from time to time.x

    rachelc10
    Participant
    Posts: 2
    Joined: 22/07/2011
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