Viewing 4 posts - 1 through 4 (of 4 total)
  • #74732
    New from the States

    Hello! Bengjie from IL, US

    I’m 35, with CMD. . at times i feel blessed for having this all my life.. in the sense that, i cant imagine myself not having the issues i have had. .. . i cant imagine what it feels like to be strong, then not. . .i mean, in a sense i do.. .because i’ve used a wheel chair off and on.. . use a cane now and for the last 7 years..wow. .that long already. . … .. .but, i’ve had 35 years to just become “ok” with everything. .dont get me wrong. .it got issues :p but for the most part, i’m grateful for this point of view. . i have a close family that, as individuals, we are are very selfish. ..prideful..arrogant and not very humble and more often than not, a bit rude. … but for the most part we’re good folks. .. but, there are days i shake my head, and wonder what kind of jerk i’d be if i didn’t have CMD. ..i was lucky enough to go to an MDA camp every summer since from 9 to 18 :) and i cherrished being with the other kids, it helped me feel not so alone, helped me understand myself a bit more and more than anything, helped me be ok with beign disabled.. lord knows how much i hatee not being able to do the things i wanted to.. or had to. . . i’m rambling :) i ramble. ok. ..Hello again!

    bengjie
    Participant
    Posts: 1
    Joined: 27/02/2013
    #87993
    Re: New from the States

    Hello! Bengjie,

    Welcome to the forum and thanks very much for telling us about your journey through life.

    You obviously have a great skill in communicating many years of different emotions and
    physical problems in one short paragraph.

    You come across as dealing with things incredibly well and and having a great and responsible attitude
    to life.

    ….”Understand Yourself”….is what we all should aspire to.

    Rambling is good, it is what we do.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #87994
    Re: New from the States

    Hi and welcome aboard. I am also 35 with CMD – bit of a rambler too :D

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #87992
    Re: New from the States

    Welcome to the forum Bengjie! You sound like a great role model if anything, being positive is not always easy but it can be done! I look forward to seeing you around :)

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
Viewing 4 posts - 1 through 4 (of 4 total)

You must be logged in to reply to this topic.

Keep in touch