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Multicore

Viewing 9 posts - 1 through 9 (of 9 total)
  • January 17, 2012 at 10:29 pm #74201
    Multicore

    Hey
    I’m Emily I’m 20 and I have multicore myopathy. I live in Chesapeake virginia. I haven’t found anyone who has my disease. But I’m excited to meet people like me :)

    Emily
    Participant
    Posts: 3
    Joined: 17/01/2012
    January 18, 2012 at 1:11 pm #84167
    Re: Multicore

    Hi Emily welcome to the forum :D

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    January 18, 2012 at 1:16 pm #84168
    Re: Multicore

    Glad you have found the forum.

    Feel free to browse, ask questions or just chat.

    Here is the main MDC site with lots of information.

    http://www.muscular-dystrophy.org/

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    January 18, 2012 at 5:12 pm #84169
    Re: Multicore

    Hi Emily

    *Big wave* and welcome!!

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    January 19, 2012 at 1:34 am #84170
    Re: Multicore

    Thank you :) can’t wait to meet new people

    Emily
    Participant
    Posts: 3
    Joined: 17/01/2012
    January 22, 2012 at 5:35 pm #84171
    Re: Multicore

    Hi Emily,

    Welcome to TalkMD. I was diagnosed with Minicore (multicore) Myopathy at 3 1/2 years now 23 :) It’d be great to get to know you and pass on the multicore contacts I’ve gathered over the years.

    All the best,

    Fi x

    ambitiousturtle24
    Participant
    Posts: 69
    Joined: 18/03/2011
    January 22, 2012 at 7:05 pm #84172
    Re: Multicore

    Welcome to TalkMD Emily :)

    Sagar
    Participant
    Posts: 82
    Joined: 20/12/2010
    January 23, 2012 at 1:07 pm #84173
    Re: Multicore

    I think you may be in luck, i’ve got multiminicore…disease/myopathy, all the terms are so confusing. We all should chat coz i’d actually like to see how you”ve been doing and how you deal with everything. As i know its sort of a rare condition so its nice to meet people with it…well not that nice, you know what i mean hardy har.

    CliffDidAnElvis
    Participant
    Posts: 2
    Joined: 04/11/2010
    September 12, 2012 at 4:03 pm #84174
    Re: Multicore

    Hi All

    Our daughter, Gabi, has been diagnosed with multiminicore (she is 3 and a half now) and i would love to be able to chat to people dealing with the same genetic disorder…

    Anonymous
    Inactive
    Posts: 0
    Joined: 01/01/1970
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