Migration from Incapacity Benefit to Employment and Support

Greetings.

I’m relatively new at this, but was wondering if anyone else out there could provide me with some much needed guidance. Currently in the process of being migrated from Incapacity Benefit to ESA and am dreading the Work Capability Assessment.

I have Minicore Myopathy, classic form, which is a congenital form of muscular dystrophy. This disorder severely compromises the mitochondria in the cells, which produce the energy necessary for a body to perform all of its functions (movement, breathing, digestion, cognitive functioning, etc.). Consequently, my physical strength is quite limited, my mobility is restricted, and I experience debilitating sequelae, including severe scoliosis, reduced lung capacity, and dilated cardiomyopathy, as well as chronic pain and fatigue. Because my daily energy reserve is extremely low compared to the healthy adult, I also experience other symptoms when I am forced to expend more energy than I have available (during times of illness, stress, increased pain, or simply an extended period without rest). These symptoms include increased breathing and mobility impairment, difficulty focusing my eyesight, cognitive confusion, nausea, and sometimes psychotic symptoms (symptoms similar to severe and prolonged sleep deprivation in the healthy adult). Subsequently, it is vital that I manage my energy reserve on a daily basis by limiting all physical and cognitive demands, maintaining a high calorie intake, and ensuring that I always have access to a place of rest. If access to these resources becomes restricted for any reason, I can quickly become quite physically ill

Due to the aforementioned condition it precludes me from working a full-time 9 to 5, 5 days a week. I would be much obliged if someone out there could assist me?

Thanks.

Flynn