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  • #74469
    MDC Launches New Advocacy Service…..

    Just received my post today with my MDC “Advocacy Pack”.

    This is part of the new Advocacy Service launched by the MDC to assist people
    living with Neuromuscular Disease.

    Nic Bungay, Director of Care, Campaigns and Information, said:

    Over half of people* with muscular dystrophy and related conditions report that they struggle to access the necessary care, support and adaptations they need to live a full and independent life. The new Advocacy Pack has been developed to support the people who use it with knowledge of their rights and the tools to fight for them..

    http://www.muscular-dystrophy.org/get_involved/campaigns/campaign_news/5514_supporting_you_new_advocacy_service_launched

    The pack has an amazing variety of useful things, including template letters for many different
    situations that you might find yourself in.

    Discussing it with them this is only part of an on-going service to help and assist people with MD.

    They even had the exact factsheet that I needed last month on the anaesthic complications for
    my recent hospital operation. Why did it not occur to me to ask the MDC?

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #85998
    Re: MDC Launches New Advocacy Service…..

    Sounds like a must have piece of kit for us peeps, never know when it may come in handy. Thanks for flagging that up.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #85999
    Re: MDC Launches New Advocacy Service…..

    Thanks for flagging this up. I have just requested a copy as it may come in handy with some issues I have currently

    Cheers
    Gill

    miracle77
    Participant
    Posts: 267
    Joined: 17/08/2011
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