MDC Launches New Advocacy Service…..
Just received my post today with my MDC “Advocacy Pack”.
This is part of the new Advocacy Service launched by the MDC to assist people
living with Neuromuscular Disease.
Nic Bungay, Director of Care, Campaigns and Information, said:
Over half of people* with muscular dystrophy and related conditions report that they struggle to access the necessary care, support and adaptations they need to live a full and independent life. The new Advocacy Pack has been developed to support the people who use it with knowledge of their rights and the tools to fight for them..
http://www.muscular-dystrophy.org/get_involved/campaigns/campaign_news/5514_supporting_you_new_advocacy_service_launched
The pack has an amazing variety of useful things, including template letters for many different
situations that you might find yourself in.
Discussing it with them this is only part of an on-going service to help and assist people with MD.
They even had the exact factsheet that I needed last month on the anaesthic complications for
my recent hospital operation. Why did it not occur to me to ask the MDC?
"Even if you are not paranoid, it does not mean they are not out to get you!".