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MD in Russia

Viewing 6 posts - 1 through 6 (of 6 total)
  • July 5, 2012 at 5:48 am #74464
    MD in Russia

    Hello everybody!
    My name is Marina and I am 30 years old. I live in Russia, St.-Petersburg. I have had LGMD (Limb-girdle muscular dystrophy) for more than 15 years. Nevertheless I am happy to have two children, boys – Gregory (5 y.o.) and Nikolas (1 month only), a wonderful husband and some other members of the family and friends who support me.
    I was happy to find Talk MD because there is a lot of useful and interesting information.
    I also have my own blog about difficulties of living with MD in Russia, you are welcome – http://disabledmum.com/

    Marina
    Participant
    Posts: 1
    Joined: 05/07/2012
    July 5, 2012 at 8:30 am #85972
    Re: MD in Russia

    Welcome to the Forum Marina. We are glad you have found us.

    I have enjoyed reading your blog and can see you are doing a very good job of coping
    responsibly with your disability. Even superb pictures of your children and mum.

    We have posters with Limb Girdle, so feel free to ask any questions or just browse away
    or in difficult times have a rant. The main MDC site is avaiable by clicking to logo at the top
    and has even more information.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    July 5, 2012 at 9:42 am #85973
    Re: MD in Russia

    Welcome ! I got LGMD. No sons or husband though… that I know of :lol:

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    July 5, 2012 at 12:38 pm #85974
    Re: MD in Russia

    Hi Marina welcome to the forum I have LGMD also ;)

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    July 5, 2012 at 2:26 pm #85975
    Re: MD in Russia

    Hello Marina, i have just finished reading your blog, what a pity about your home helper. :(

    Your family pictures are really nice, thanks for providing us a little window into your life. I hope you find what you require on this site.

    All the best
    Ranald

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
    July 7, 2012 at 1:34 pm #85976
    Re: MD in Russia

    Hi Marina and welcome to the forum. I have just read your blog and I think you cope really well with your sons. I can understand how difficult is must be for you. I have Mitochondrial Myopathy and have alot of the same symptoms as you and I know I couldn’t cope with two little children. My daughter is 31 so I only have to think about the possibility of grand children now.

    Best wishes
    Val

    Valerie
    Participant
    Posts: 166
    Joined: 15/09/2010
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