Looking for Emily how has Minicore

“My name is emily im 22 and i was diagnosed aged 7 with a rare form of MD called Minicore (multicore) Myopathy, these past years ive had a hard time dealing with it (although i am more fortunate than other people on this site) i just couldnt help feeling sorry for myself all the time. Over the past few years i have become much weaker and decided i needed to make a change in my life and take charge. I recently went to the MD conference in Nottingham and found it really inspiring and had my eyes opened to alot of new things.”

Hi Emily,
I also have Minicore myopathy and would relish the opportunity to chat to someone afflicted with the same rare form of MD as myself. I would be much obliged if you could contact me.I’ve never been to an MD conference, but have no doubt they are awe inspiring.

Hope to hear from you.

Best wishes,

Flynn