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LGMD 1C

Viewing 8 posts - 1 through 8 (of 8 total)
  • February 9, 2016 at 3:11 pm #121356
    LGMD 1C

    Hello I am new to this whole thing, so any advice, help etc. That can be offered would be welcome. I hope mainly to hear from people with LGMD 1C, and to share experience and ideas.

    Benthehen
    Participant
    Posts: 0
    Joined: 09/02/2016
    February 9, 2016 at 3:36 pm #121358
    Reply To: LGMD 1C

    Hello, welcome aboard :welcome:

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    February 10, 2016 at 6:36 pm #121413
    Reply To: LGMD 1C

    Thanks Vicki I am still finding my way round

    Benthehen
    Participant
    Posts: 0
    Joined: 09/02/2016
    February 10, 2016 at 7:32 pm #121415
    Reply To: LGMD 1C

    hi and welcome to talk md

    Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    February 10, 2016 at 9:11 pm #121418
    Reply To: LGMD 1C

    Hello and welcome

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    February 10, 2016 at 10:17 pm #121421
    Reply To: LGMD 1C

    Hi and welcome :waving:

    I’m sure we have other members with LGMD 1C. Keep checking as not everyone logs in regularly.

    We are a friendly bunch and often there are issues that crossover and are relevant to others. Any questions, feel free to ask.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    April 26, 2022 at 11:36 am #202490
    Reply To: LGMD 1C

    Hi. My name is Jennifer Lane and I have been suffering with LGMD1C for almost 13 years. Every dr I went to for 11 years said I had severe fibromyalgia. It wasn’t until my son (16) started showing symptoms did we figure out what it was. His muscles ripple so a Neuro/Musc specialist knew what it was. He did DNA test that was positive for CAV3 then I took the test and was positive as well.

    JenLane
    Participant
    Posts: 0
    Joined: 26/04/2022
    May 16, 2022 at 7:31 pm #202566
    Reply To: LGMD 1C

    Vijay from India. Age 36. Having Limb-Girdle Muscular Dystrophy.
    I am working and need to earn more to pay for my medical support and home care taker. I have aged father who has same LGMD and aged mother to take care with. If any one could help me to get online/work_from_home kind of jobs from your country could be highly appreciated.

    Vijay
    Participant
    Posts: 0
    Joined: 13/05/2022
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