Viewing 3 posts - 1 through 3 (of 3 total)
  • #202316
    IBM physical difficulties

    Hello, I’ve just joined this forum. I have IBM and I now find it very difficult to get up from chairs as they’re nearly all the same sort of height. I’m reluctant to leave home in case I can’t sit down wherever I go. Does anyone know of a good product I can take out with me which is comfortable, safe and not prohibitively expensive please? I would also like to use such a product at home so that I can sit at the dining table, at my desk, at the garden table etc. etc. I expect there are some people on this forum who have IBM and share similar problems? It would be great to share ideas etc. please? Thank you.

    Bo bo
    Participant
    Posts: 0
    Joined: 12/11/2021
    #202317
    Reply To: IBM physical difficulties

    Hello and welcome Bo Bo. I am glad you have found us. My first suggestion would be that you should contact the local Occupational Therapists as they are the best people to advise on these matters, and may eve be able to help find funding to buy the necessary equipment. I might also suggest one of the wheeled frames that not only help you walk but also have a built in seat. They can be used outside and inside too. But I would re emphasise, that as it appears your condition is changing, a proper assessment by the OT people would be the most sensible way to go. You do not need a GP referral, but your GP may well have their telephone number for you to contact them directly.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #202319
    Reply To: IBM physical difficulties

    Hello Mike, thank you so much for getting back to me. I have just become ‘plugged into’ an OT who is helping me with some issues. But my most awkward problem is that normal height seats are now virtually impossible for me to get up from. The OT is getting me a walker which is brilliant as I am becoming more prone to falling but it will not have a seat because, of course, I cannot get up from it. Inclusion Body Myositis weakens the quadriceps so much that they cannot lock the knees and my legs can completely give way. If I fall now, I cannot get up from the ground without a complete lift by someone and seat heights are needing to be higher and higher. I have raised my settee by 9 inches hope to get a rise recliner armchair soon. There are a couple of portable seat risers on the market but I don’t think they rise high enough for me to get up from. It is unfortunate that the OT does not have the magic answer as of yet. I’m wondering if other people with this particular problem, know what to do – maybe others with IBM. Thank you again for your help, it was very kind of you to write to me.

    Bo bo
    Participant
    Posts: 0
    Joined: 12/11/2021
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