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Hi, I'm Bill, I have IBM.
I was diagnosed with inclusion body myositis 4 years ago. I am shocked how little support is made available to people in this position. Most medical people I have been in contact with have never heard of IBM. Makes life difficult. 😷
Reply To: Hi, I'm Bill, I have IBM.Hi Bill,
Welcome to the forum.
We do have some members with IBM but they might
bit be visiting the forum at this exact time.A lot of the issues you face will be similar for
all three types of MD so feel free to ask questions."Even if you are not paranoid, it does not mean they are not out to get you!".
Reply To: Hi, I'm Bill, I have IBM.Hello and welcome Bill. Please do feel free to ask questions, comment or even rant about things.
Mike
So many love songs, so little love.
Reply To: Hi, I'm Bill, I have IBM.Hi
It might be useful if you share abit about yourself like age, first symptoms, progression of IBM and how it currently effects you.
It might not be as bad as you think, but yes initially is shocking and help is basic as most GPs know nothing about these conditions
Reply To: Hi, I'm Bill, I have IBM.Hello Bill, I’m Anne and I was diasgnosed with I.B.M. almost 8 years ago. At first progression was very slow, but now (sadly) it is far from slow. I agree with the lack of provision. In fact the hosital have discharged me back to the care of my doctor. What they mean is that they don’t want to be bothered as there is nothing they can do!
Nice to meet a fellow sufferer.Reply To: Hi, I'm Bill, I have IBM.
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