MY NAME Is Sadia and my child has been diagnosed with Duchenne muscular dystrophy. He has been identified to have a exon 51 deletion.
Hello and welcome to the forum.I apologise for the delay to contacting you but I have been away for treatment.It would be really interesting to know a few more details, for example about his age, and if you are getting the right support.
So many love songs, so little love.
His age is 4 years old
So send me email I’d so I’ll send you all my child’s reports..
I was just wondering if he is under the care of a neurologist, and physio. It is important to make sure that he is monitored and helped , and sometimes it is hard t find the right help.
There is no cure in UK
There is no cure anywhere in the world at the moment but there is exciting work being done on many research fronts. Please do remember that.
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