Reply To: Hello
Hello and welcome Helen, glad to have you on board. Often changes like this can happen, especially as new tests are developed. Polymyositis, and indeed Dematomyositis (which I am currently being investigated for), are both very rare conditions. Investigating them, as you know, is complex, and currently impossible due to a certain virus. So it is possible that the new diagnosis should come as no surprise. The consultants you will see are extremely well trained, and concerned with your welfare, but have t sift through a mountain of information often, before making a diagnosis.
In some ways being a participant in the project has helped you more than you had expected. At least now you have a diagnosis backed up by genetic evidence, and can take your life forward with that knowledge.
Mike
So many love songs, so little love.