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fsh md

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  • July 29, 2021 at 2:55 pm #202211
    fsh md

    hi my name is george I have F S H md I was diagnosed over twenty years ago when I left the military. I was a PTI and very fit. after my diagnosis the first ten years I saw a top doctor from oxford once a year. after that I was given braces for my legs because I had lost 85% muscle mass in my upper legs. since then I have seen no one until recently I am waiting for a appointment to see a physio in Northampton.

    gpw
    Participant
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    Joined: 29/07/2021
    July 30, 2021 at 1:34 pm #202226
    Reply To: fsh md

    Hello and welcome George. I too have FSH, and like many it is not a good thing. It would be interesting to know more about you and your condition as it seems that very little is being done to help you. Maybe it is by choice, but there are lots of things that could help if you need it, as one thing is for sure, as you have found already, you are not going to get better with time.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    January 15, 2022 at 9:35 pm #202390
    Reply To: fsh md

    Hi I admin the Muscular Dystrophy Support Group on Facebook, for those in the UK & Ireland affected by all types of Muscular Dystrophy. If you’re on Facebook you’d be more than welcome to join us x

    https://www.facebook.com/groups/3384836634865707/?ref=share

    KatR
    Participant
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    Joined: 04/07/2019
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